About Me

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After being told I would never be able to have children, I am now a stay-at-home Mommy to Maddie who happens to have Down Syndrome. I've been married 16 years to my best friend, having the time of my life. Thanks for stopping by and sharing in our little journey through life.

Wednesday, August 27, 2014

A Monumental Moment

This image probably won't stand out to anyone else but me.  
I knew it was worth capturing the moment I heard the words, "I did it!"

This image represents courage, facing fears, and overcoming real and present obstacles in life.  

And I'm so proud because my baby girl, "did it!"

We had somewhat of a traumatic experience with our second sleep study.  
The technician taking off the "stickers" on Maddie had no mercy!
He ripped them off, I'm sure thinking that was the best method.  

Maddie was wailing.
With 27 wires hooked up and several more "stickers" to rip off, it was torture.  
She looked like she had a rash when it was all said it done.  
Her skin was irritated with bumps and red spots which stuck around for several days.  
It hurt!

So, when we went to the cardiologist Monday morning and the technician announced she was going to put a few "stickers" on for an echocardiogram, Maddie was in full-on panic mode.  
Normally she's a flight responder when it comes to stress but that day, she was going to FIGHT!
While I had to hold her down (the worst feeling in the whole world, btw) the technician somehow managed to get all of the sticker tags on.  

Maddie was NOT going to let her connect any wires though!

She fought hard.
And won!
Looking back she probably saved us several hundred dollars ;)

The Dr. came in and did things the old fashioned way with nothing but a stethoscope and was able to ease all of our concerns about an irregular heartbeat.
She has what's called a sinus arrhythmia, which is very common and considered normal.

Now with were left with all these "stickers" all over her chest.
I tried reassuring her that we could use a wet paper towel and ease them off, or we could use soap and slide them off.
She was having none of it!

So we wore them home.

When her daddy came home, she showed him her chest and said "hurt" and started crying!

I decided we would just attempt to deal with them in the bathtub.
I put "magic bubbles" in to 'get those stickers.'  

She apprehensively got in and I stepped back and gave her some space.
I knew this was something she would have to have control over.

In my mind I was thinking we would have to wear these stickers for weeks waiting the adhesive to give out.

And then I heard her proud, tiny little voice exclaim, "I did it!"
She had taken off the first sticker all by herself.
She faced her fear of pain and conquered it.

All. by. herself!

She took every single one off.
Her skin is still irritated with red little squares marking the spots her "stickers" taunted her.
I'm so proud of her.

I hope she carries this lesson with her always.
And just in case she forgets, I have the documentation to remind her what she's made of!


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