- After being told I would never be able to have children, I am now a stay-at-home Mommy to Maddie who happens to have Down Syndrome. I've been married 16 years to my best friend, having the time of my life. Thanks for stopping by and sharing in our little journey through life.
Saturday, October 30, 2010
Well, in this post I may have painted Kyle in a bad light and to set the record straight I feel I need to tell you how supportive he has also been. : ) He did help me put all of the picture wires on the frames and the truth is, he has always been my voice of reason - which is one of the things I love so about him so much. I would always rather have honesty than pander. So, even though it may be hard to take sometimes, thanks for your honesty.
Friday, October 29, 2010
This tree photography contest has become a big deal to me. The other night Kyle (in all his honesty) said he didn’t think I had any pictures worthy of entering. (ouch!)
There was a time in my life I would have been crushed, but not anymore! I’m a risk taker at heart, and this feels right. I've learned when you are a follower of Christ things happen in your life (big or small) for one of two reasons: 1) to glorify God 2)to further your own destiny (which, incidentally, glorifies God). God’s got this. Besides, what do I have to lose? A few bucks on the entry fee. No big deal. Kyle may be right, and I may have no business entering this contest, but the process has already been so worth it! I’ve been out in nature. I’ve seen trees. I’ve taken pictures. I’ve seen the glory of God. And that makes me a winner whether I win the contest or not.
So here are the final entries:
|True Colors (i'm taking a big risk with this one and putting it in a red frame)|
|Plank in the Eye|
Tuesday, October 26, 2010
Monday, October 25, 2010
We met our Speech Therapist, Kara, with Sooner Start at the park this morning (so fun!) and on the walk back home, Maddie fell asleep. See her new Sock Monkey hat? I couldn't wait for an excuse to put it on her, so when the wind picked up just a tiny bit I swooped in and covered her ears because that's what good mommas do right? : ) I found this little gem at the Affair of the Heart craft show this weekend. Me and Mom and Mistie and Christie had a really good time and shopped till we dropped!
Thursday, October 21, 2010
Wednesday, October 20, 2010
Tuesday, October 19, 2010
I'm so glad our hearing test is over and done with! Maddie had an Auditory Brainstem Response test yesterday that she had to be sedated for. This required sleep depriving her and since she had to drink chloral hydrate, or as we call it "sleep juice" she couldn't eat or drink anything 3 hours before the testing. We kept her up late the night before and woke her up at 6:15 yesterday morning to sleep-deprive her. She had her breakfast right away, and then I offered her some graham crackers at 9:30 but she wasn't interested. By 11:00 she was ready to eat, but it was too late. Her test was at 1:00. She kept signing apples, cheese, banana, but nothing was working. It was sad to have to tell her no! She usually naps between 11:00 and 12:00 so she was really getting sleepy. You would think a combination of needing sleep and a very hungry toddler would make for a monster-of-a-child, but amazingly Maddie was her pleasant, wonderful self! The hardest part was keeping her awake during the 30 minute drive to the clinic. Once we got there, she was greeting everyone in the lobby and being super cute.
The testing took a couple of hours and we learned she hears perfectly! This is big news for our speech development journey. We won't have to worry whether she is hearing the sounds or not. What a relief!!
Poor thing didn't wake up until 4:30. She went to bed at her normal 8:30 bedtime and slept through the night!
Monday, October 18, 2010
So we could do this with REAL leaves!!
And so I could get a great shot of a tree to submit for a photo contest for the Norman Parks Department! The deadline is Nov. 3 and so far I've got nothing. I'm thinking a trip to the Nature park will have to be scheduled sometime this week.
Wednesday, October 13, 2010
Monday, October 11, 2010
I admit I've been in denial...seriously, telling myself this day might never come. But I suppose it's good to happen now, while Maddie can still smile and wave back and I can prepare ourselves for the day when it will hurt far worse than today. The day when a comment is made and Maddie realizes she's different.
In hind sight, I should have stopped and explained to the little boys that she looks a little different simply because she has Down Syndrome. To expect acceptance we have to teach acceptance, right?
So, how would you have handled it? How do you prepare a child for something like this?
Saturday, October 9, 2010
Friday, October 8, 2010
Thursday, October 7, 2010
I was so happy the other day to find this pair of designer jeans at a consignment store (for super cheap!) But then I was thinking about my baby's designer genes. Some of you may not know that although she has Down Syndrome, she still only has 46 chromosomes! CRAZY, RIGHT? Turns out I only have 45 chromosomes. Both of our 14th chromosomes hitched a ride with the 13th chromosome leaving us with an extra long 13th chromosome and only one 14th chromosome. How amazing is God? Thanks God for our designer genes and the super great deal on these designer jeans too!!
Yesterday we went to the library for storytime. Maddie squealed with delight as soon as we crossed the threshold of the library entrance...know why? BUBBLES! At the end of storytime, they always blow bubbles and it's Maddie's favorite thing. I got this picture with shutter priority setting at 1/80. A faster shutter speed would have helped with clarity, but then I may not have captured the blur in the background, so this is the shot and I'm sticking to it!
Wednesday, October 6, 2010
gourds by color. She finds them more tasty than colorful right now, but we're making progress and she loves preshool time. It's the one thing that motivates her to clean up!